LOST

I’m not supposed to be here today, sat on my sofa watching TV, reading a few chapters of my book, faffing on my phone.

I’m supposed to be at a quiet day, a kind of retreat with some painting and reflection.

I was really looking forward to it. I rejoiced when I realised that postponing my chemo for a week when my bloods were low meant this day was free.

This morning I got ready and set off, the venue was a quiet country church, only a few miles away. I’d checked on Google maps last night. I like to think I have a good memory when it comes looking at maps and getting the location lodged in my brain. Left turn, right turn, where the local landmarks are.

But this morning driving along the narrow roads, I made 3 U turns believing I’d driven too far on each particular route.

I was lost, not totally or hopelessly lost, I still knew my way back home.

I could have stopped the car, got out my phone and refreshed my memory of exactly where to go, but instead I did turn round and come home.

Having chemo affects your brain, I can’t remember things like I used to.

Having chemo affects your sleep, your taste buds, your general wellbeing.

Having chemo affects your whole social life, one minute you are planning something you know you will enjoy and the next you are cancelling your plans and retreating to that safe space on the sofa.

My chemo should be finished this time next week, bloods permitting and barring any unforeseen circumstances.

It will be time to get my life back on track, this wonderful life I planned for once youngest son had half flown the nest and gone to uni.

But just like driving on narrow country roads looking for something that I’m sure should stand out proud I fear I may still be a little lost and what I’m looking for will remain obscured.

When I used to regularly go walking with a group of friends, there was always delight in spotting an arrow pointing the direction we should go in. Especially on a long hot excursion when we were longing for a scone and a cuppa!

Yes there were times we would explore and take the adventurous route for the joy of it, we’d laugh as we navigated our way over fallen trees, under branches, down steep slopes and precariously crossing streams on slippery rocks. It was all part of the fun.

Chemo is not fun, being lost is not fun, losing part of yourself is not fun.

I feel like I’ve been living in a haze, especially these last few weeks when the symptoms of chemo have cumulated transforming me into a slob moulded to fit the sofa!

OK. I’m being a bit harsh on myself there. I have actually achieved a great amount with moving only weeks before a major op. My new house is basically in order, all bar the paperwork but when was I ever on top of that since Andrew died?

Ah now that’s another loss, excuse me while we detour up a different path.

I’m an empty nester with a nest for one, I want to explore, to travel and while being on my own doesn’t bother me, I do quite like my own company. Sometimes it would be nice to share experiences with someone, to have memories to look back on together when we grow old!

Anyway back to the proper path, where was I? I’m not sure where I should be going….

Where is the signpost, which way do I take at the crossroads?

It’s alright taking one day at a time and doing all you can manage in a day, that’s been my regime for a while now, I no longer plan like I used to.

But not planning means not dreaming and my dreams have got dusty, to be honest some of them have got lost in the process of dealing with cancer and having treatment.

I know that surgery was successful in removing everything and the chemo is just a mop up, of the harshest kind, but until I see the oncologist and get the results of my latest scan you can only hope and pray.

When you go for a CT scan, in the machine a voice tells you to “breathe in and hold your breath”.

I’m just waiting for the line “and breathe”.

Then I shall consult my maps, dust off my dreams and plan something I can actually achieve – I don’t think it will be finishing the paperwork!

Maybe I’m not really lost. Perhaps I should see this as a detour and this new path will actually lead me to my destination, only time will tell…